Book Review – Doing Harm: The Truth About How Bad Medicine and Lazy Science Leave Women Dismissed, Misdiagnosed, and Sick by Maya Dusenbery

I wasn’t planning on doing a dedicated book review post for this book – I just fancied reading it. After the first 3 pages I was already frustrated and angry enough that I was ready to throw the book across the room; not because it’s poorly written, far from it, it’s the contents of the pages that annoyed me so much. I hope that this post encourages some of you to read this book, it covers a topic I knew nothing about to begin with, and does a brilliant job of making a complex web of scientific research projects – reasons behind them, the errors they contain, and the source of the funding that enabled them to happen – accessible and easy to digest. Get Maya Dusenbery’s Doing Harm, here.

What the publisher says

Editor of the award-winning site Feministing.com, Maya Dusenbery brings together scientific and sociological research, interviews with doctors and researchers, and personal stories from women across the country to provide the first comprehensive, accessible look at how sexism in medicine harms women today.

In Doing Harm, Dusenbery explores the deep, systemic problems that underlie women’s experiences of feeling dismissed by the medical system. Women have been discharged from the emergency room mid-heart attack with a prescription for anti-anxiety meds, while others with autoimmune diseases have been labeled “chronic complainers” for years before being properly diagnosed. Women with endometriosis have been told they are just overreacting to “normal” menstrual cramps, while still others have “contested” illnesses like chronic fatigue syndrome and fibromyalgia that, dogged by psychosomatic suspicions, have yet to be fully accepted as “real” diseases by the whole of the profession.

An eye-opening read for patients and health care providers alike, Doing Harm shows how women suffer because the medical community knows relatively less about their diseases and bodies and too often doesn’t trust their reports of their symptoms. The research community has neglected conditions that disproportionately affect women and paid little attention to biological differences between the sexes in everything from drug metabolism to the disease factors–even the symptoms of a heart attack. Meanwhile, a long history of viewing women as especially prone to “hysteria” reverberates to the present day, leaving women battling against a stereotype that they’re hypochondriacs whose ailments are likely to be “all in their heads.”

Offering a clear-eyed explanation of the root causes of this insidious and entrenched bias and laying out its sometimes catastrophic consequences, Doing Harm is a rallying wake-up call that will change the way we look at health care for women.

What the critics say

“Maya Dusenbery brings new life to one of the most urgent yet under-discussed feminist issues of our time. Anyone who cares about women’s health needs to read this book.” (Jessica Valenti, author of Sex Object: A Memoir)

“In this groundbreaking book, Dusenbery shows how the same forces that hold women back in society more broadly lead to subpar medical care and inadequate attention to health issues that impact women. Every doctor, scientist, and health care provider and researcher should read this book. And so should every woman.” (Jill Filipovic, author of The H-Spot: The Feminist Pursuit of Happiness)

“Maya Dusenbery’s exhaustively researched book is equal parts infuriating and energizing. No woman will see the medical establishment and – perhaps even more profound – her own body the same way after reading it. In a just world, it would be required reading in medical schools from this day forward.” (Courtney E. Martin, author of The New Better Off: Reinventing the American Dream.

My thoughts

I started this book on a flight to Brussels during my week off – and almost immediately starting to quote bits of it to my friend who was sat next to me, “Did you know that in American medical faculties there’s a gender pay gap of $20,000?”, “Oh my God, you know that aspirin study that led to doctors advising people over the age of 50 to take an aspirin a day to lower the risk of heart attacks? THE STUDY WAS ONLY DONE ON MEN INITIALLY! Then, when there was another study done on women, the results were not the same, yet the advice has stayed constant!”, “HOLY SHIT, WOMEN ARE 50-75% MORE LIKELY THAN MEN TO HAVE ADVERSE REACTIONS TO DRUGS BECAUSE THE MAJORITY OF DRUGS HAVE ONLY BEEN TESTED ON MEN!!”

You can imagine how bad the shouting and swearing got as I progressed through the book.

The book itself is split into three parts; ‘Part 1 – Overlooked and Dismissed: A Systemic Problem’, ‘Part 2 – Invisible Women in a ‘Male Model’ System’, and ‘Part 3 – Neglected Diseases: The Disorders Formerly Known as Hysteria’, and when I read the contents I was immediately intrigued by Part 1 over the other 2. After reading, I think I enjoyed that section the most, but Parts 2 and 3 were the areas that cemented my anger – they were the areas where Dusenbery was able to really drill down into the research; they provided the ammunition to back up the anger she’d fuelled in Part 1.

Honestly, towards the middle of Part 2 I was starting to feel pretty hopeless; how on Earth could we have built a medical system on a foundation of research that was conducted almost entirely on male participants? Even down to the fact that lab research has been found to be conducted on mainly male rats and mice, not female (or God forbid, and equal split)?! Urgggghhh. Anyway, the most I read, the more frustrated I got – until that frustration turned to wanting to do something about the issue of bias in medical research.
I hope that this book stays with me and influences the work that I do over the course of my career; I want to remain in the clinical trials methodology field after my PhD is complete, and bearing the issues described by Dusenbery in mind will mean I can contribute at least in some small part, to alleviating these problems.

Would I recommend it?

10000000% yes. Read it, gift it, take it to medical appointments with you, fold the corners of pages that contain topics that infuriate you, and please, please, spread awareness of the fact that medical research has, and continues to fail women.

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Some Things I Learned From Taking a #DigitalDetox

Helloooooo internet! It’s weird being back after that little break I had. After a really hectic week back at work it almost feels like I never took the break at all, but I have kept up some of the habits I developed over the course of the week and I’ve felt much more able to deal with my workload. I figured it might be helpful to share those with you.
For anyone that is super stressed out, feeling a bit anxious or unmotivated (Katie’s most recent post is what triggered me to write this one..), these tips are really simple and should hopefully help.

Disclaimer: Some of these tips are embarrassingly simple, so much so that I’m shocked that I didn’t implement them earlier on in this PhD process. Still, if I wasn’t doing them before then I’d guess that lots of other PhD students aren’t doing them now.

1. Turn your notifications off

Before last week just about every app on my phone had notifications switched on; WhatsApp, Facebook, Facebook Messenger, Twitter, Instagram, LinkedIn, Goodreads, WordPress, Etsy, the news, even when Podcasts updated each week. I (naively) didn’t think that these notifications had much of an impact on me, but switching them off has cleared out a tonne of background noise that I didn’t even realise was there. Previously, there were always notifications waiting for me on my phone, always something to think about, catch up on, acknowledge. Now, there’s nothing. Obviously I get texts and calls like normal, but notifications from apps are strictly off. I check apps when I have time to deal with the stuff that they contain, rather than constantly being aware of what I need to deal with later on in the day. Terrifyingly simple, shockingly effective.

2. Stop checking your email all the time

As with notifications, my emails are on my iPhone (seriously, iPhones are the best and worst things ever), so with one quick click and swipe I’d have checked emails from my personal account, my work account, and the account I have that’s based with one of my freelance clients. It was pretty rare that there were no emails in any of those 3 accounts; now let’s be clear, I’m not saying I’m super popular or important, 80% of those emails were likely from mailing lists or companies trying to get me to buy stuff, but still. Not checking emails was the thing I found most difficult last week – I’m a big fan of getting, and staying, at inbox zero, and I knew in the back of my mind that when I went back that would not be the case. I stuck with it though, and I check them much less often now – I’m not important enough for the world to implode if someone needs to wait an extra hour or two to get a reply from me, and it clears up head space and helps me to stay focussed on what I’m actually doing.

3. If it takes less than 5 minutes, do it now

Previously, my to do list was clogged up with tiny, tiny things. ‘Book dentist appointment’, ‘sort laundry out’, ‘clear desk’, ‘go to the Post Office’, ‘print handouts for talk’, ‘make Doodle poll for meeting’ etc etc – these things are the easiest wins to make on a to do list, so I would allow them to build up and then do them as a form of ‘productive procrastination’. No longer! Holy cow, last week I got through all these tiny little things and my to do list is about a third of the length it once was – and it’s staying that way. If it takes less than 5 minutes, it gets done there and then. This not only means I’m getting more stuff done, but it removes the clutter from a to do list and enables me to focus on the stuff I actually have to do; i.e. write thesis.

I need this print from Sighh Designs.
4. Empty time is not wasted time
How could any of my time be wasted with this little pup around? (Note – that is the feeling of true joy you see on my face).

At this point I need to get this sentence tattooed on my arm. Or printed across my laptop screen, whatever. I was thinking about what I’d done with my week off, and I couldn’t remember what I’d done on Monday and Tuesday. All I could think was that I’d looked after Milo (excellent puppy that I’ve been borrowing), given myself a pedicure, got a hair cut, read my book and watched Netflix (if you haven’t watched Queer Eye yet then oh my god, it’s the best feel good TV ever, it totally didn’t make me cry, nope not at all). That small list of things was all that I did over 2 days, and it was bloody brilliant. I just had a slow few days, I wasn’t running around like a headless chicken trying to get emails sent or writing done – it was totally relaxed. This week when I came back to work I was able to work way more efficiently so that I could then take some time away at lunch, or finish work and not be glued to my laptop long into the evening.

So yep, that’s it! I’m back and feeling super motivated for the next 10 weeks or so. Yhere is so much happening, but I’m feeling excited for it rather than nervous or anxious, it looks like that little break did exactly what I needed it to do – hoorah!

I’m Taking a Week’s Holiday 11 Weeks Before My Thesis Is Due

As you’re reading this, it’s 11 weeks until I submit my PhD thesis. 11 weeks. A decent amount of time, but it’s becoming more real by the day now. I’m writing this post in advance and scheduling it to be posted – I’m taking a break. From Monday 9th April until Monday 16th April I will be intentionally forgetting about my thesis, turning all notifications off on my phone, and logging out of Facebook, Twitter and Instagram.

I am taking an entire week to sort my head out. I’ve mentioned before that I have depression, and I really didn’t realise how how much of an impact that writing my thesis would have on my mental health. It’s not that I’ve been particularly ‘depressed’ if you know what I mean, I’ve just been a bit mopey for a few weeks; nothing major, just a bit numb and unmotivated. I’m getting better at recognising when things aren’t feeling so good, and now is one those times when I need a bit of time to myself.

I miss the feeling of being super motivated and excited to sit down and write (honestly, that was a thing a few months ago!), and this week’s holiday has come at the perfect time. I’d booked it off ages ago because I’m going to see Bastille in Edinburgh on Wednesday night (a Christmas present from my boyfriend), and then I’m going to Brussels with my best friend Friday to Monday to see Air Traffic. Initially I’d thought about just taking the days off that I needed to, but the past few weeks have made it really clear that I need to take the full week.  I need some time to sort my head out so that I can finish the PhD with the same feelings of motivation and enthusiasm that I started with. I want my thesis to be the best piece of writing I can possibly produce, and my brain is too mushy to do it justice right now.

This week I’m avoiding the internet, I’m unchaining myself from my desk and I’m going to have an entire week of doing stuff that I enjoy. Catch up with friends, read, go to the cinema, do some yoga, cook food from scratch (I’m an expert in Tesco ready meals at this point), spend time with my partner (this guy genuinely deserves a medal, I have been a true JOY to live with for the past few weeks), and actually make time to find out how my best friend’s first teaching job is going (I have been the worst friend recently, sorry everyone).

Credit: Pauline Kebuck

There will be no more blog posts from me for the next little while – I’ll be back once my head is feeling less like cotton wool and my thesis is feeling more like it will be something that I’m really proud of when it’s done.

Thesis Writing Full Time #3: No Pressure, No Work

This is a super quick check-in so that I can look back at the poor choices I have made with regards to time allocation when I’m stress-crying in the middle of June.

I’m at the point of thesis writing now where I really, really need someone to shout at me and force me to write. See my last thesis update post to see just how brilliant I’ve become at procrastination…
I’ve always been someone that works to a deadline, and if there is no pressure to get things done then I tend to leave work until the last minute. Saying that, I always get the work done – I’ve never missed a deadline – it just makes period of time closest to the deadline unnecessarily stressful.

This week instead of doing all of the thesis writing, I’ve done a million other things; so not entirely unproductive. I’ve been doing some work for Soapbox Science’s first event in Aberdeen, organising training and scouting out suppliers for various things  – finding a joiner to make 4 wooden soapboxes to very specific measurements and a limited budget is not the easiest of tasks. I also gave a talk about blogging for the University of Aberdeen’s Qualitative Research Network, and I’ve been doing some serious travel research for my Winston Churchill Memorial Fellowship (I know, it’s a tough life..).

Over the next few weeks I’m going to take part in some #remoteretreats. I think that will help me to focus. In the grand scheme of things I don’t actually have a huge amount of work left to do; the majority of the words are written, it’s about improving them and making sure all of the loose ends are tied up now.

Credit: Anna Borges / Buzzfeed

Academic Blogging – Why and How?

This afternoon I gave a talk about academic blogging for the University of Aberdeen’s Qualitative Research Network. I promised I’d share the slides from the session, so here they are (blogging about blogging.. #meta)

Links to the various people/blogs/resources that I referenced during the talk:

My Twitter: www.twitter.com/heidirgardner
The Winston Churchill Memorial Trust: www.wcmt.org.uk
Soph Arthur: www.twitter.com/sophtalkssci / www.sophtalksscience.wordpress.com
Rebecca Hall: www.twitter.com/RebeccaJHall13 / www.biologybex.wordpress.com
Andrea H.: www.twitter.com/phd_fashionista / www.phdfashionista.com
Alex Fitzpatrick: www.twitter.com/ArchaeologyFitz / www.animalarchaeology.com
Nicola: www.twitter.com/fresh_science / www.freshscience-nicola.blogspot.co.uk/
That Biologist: www.twitter.com/thatbiologist / www.thatbiologist.wordpress.com
Michelle: www.twitter.com/Silli_Scientist / www.alloksci.com
Scientific Beauty: www.twitter.com/sciencebeaut / www.thescientificbeauty.com
Arts & Humanities Research Council’s North West Consortium Doctoral Training Partnership blog: www.nwcdtpblog.wordpress.com
Research the Headlines (The contributors to Research the Headlines are all current or former members of the Royal Society of Edinburgh‘s Young Academy of Scotland): www.researchtheheadlines.org
Students 4 Best Evidence: www.students4bestevidence.net
Let’s Talk Academia: www.letstalkacademia.blogspot.com
Goop (please, please only use this as a guide for what not to do with blogging – keep your integrity and blog about topics with evidence behind them!): www.goop.com
Jade Eggs for Your Yoni: www.goop.com/wellness/sexual-health/better-sex-jade-eggs-for-your-yoni
Dr Jen Gunter: www.drjengunter.wordpress.com
Dear Gwyneth Paltrow, I’m a GYN and your vaginal jade eggs are a bad idea: www.drjengunter.wordpress.com/2017/01/17/dear-gwyneth-paltrow-im-a-gyn-and-your-vaginal-jade-eggs-are-a-bad-idea
12 (More) Reasons to Start a Jade Egg Practice: www.goop.com/wellness/sexual-health/12-more-reasons-to-start-a-jade-egg-practice
If Gwyneth Paltrow is so effing tired maybe she shouldn’t put jade eggs in her vagina: www.drjengunter.wordpress.com/2017/03/09/if-gwyneth-paltrow-is-so-effing-tired-maybe-she-shouldnt-put-jade-eggs-in-her-vagina
Gwyneth Paltrow and GOOP still want you to put a jade egg in your vagina. It’s still a bad idea.: www.drjengunter.wordpress.com/2017/05/11/gwyneth-paltrows-jade-eggs-again
Do Story: How to Tell Your Story So the World Listens: www.amazon.co.uk/Do-Story-World-Listens-Books/dp/1907974059
Science Blogging: The Essential Guide: www.amazon.co.uk/Science-Blogging-Essential-Christie-Wilcox/dp/0300197551
Don’t be SUCH a Scientist: www.amazon.co.uk/Dont-Be-Such-Scientist-Substance/dp/1597265632
(I also reviewed this book – take a look here)
Information is Beautiful: www.amazon.co.uk/Information-Beautiful-David-McCandless/dp/0007294662 / www.informationisbeautiful.net
Knowledge is Beautiful: www.amazon.co.uk/Knowledge-Beautiful-David-McCandless/dp/0007427921
The Conversation: www.theconversation.com
Mona Chalabi: www.twitter.com/MonaChalabi / www.instagram.com/monachalabi

Thesis Update – T-Minus 3 Months

I’m now 3 months away from handing in my thesis. 3 months sounds a lot friendlier than 12/13 weeks, so I’ve going with that. I’m coming strangely close to the end of the PhD process, and to be honest I am feeling a bit sad about the whole thing. This PhD has been brilliant – even the bits that have been tedious or boring, I’ve enjoyed because I’ve found a subject I’m passionate about. It will be very, very strange to have this thesis done and handed in, but I’m lucky in that I’ve managed to secure a short term contract that will keep me working with the wonderful team at HSRU until the end of 2018 at least. That’s a big weight off my shoulders, and means that my thesis needs to be done! Anyway, here’s an update with 3 months to go; I wrote a blog post with 6 months to go and said “there’s work to be done but I think it’s doable!” – that’s where I’m still sitting now, I know that I can get this done and handed in on time, I just need to really knuckle down for the next 3 months.

So, how far have I got?

Literature Review

In my last update post, I aimed to:

  • Sort out the categories of papers into more manageable subsections, and work them into a sensible order. Get at least 3,000 words written.

I’ve sorted the categories of papers into various folders that will help me to write sections of the literature review, and they are in some sort of sensible order. Confession time – I have not written 3,000 words. To be honest, I have done absolutely everything in my power to avoid writing this literature review; my flat is spotless, there is no dirty laundry at all, I’ve seen all the films that I’m interested in that are currently showing at the cinema, and I’ve found complete strangers to puppy-sit for on Borrow my Doggy (if you don’t know what this is and you really like dogs, I suggest you go and sign up asap) – proof below.

There’s also an unfinished 3,000 piece jigsaw puzzle taking over my living room floor. Seriously, the jigsaw thing isn’t a joke. It’s been there for over a week now.

ANYWAY. This week I’m locking myself in my office at home, and I’m getting a first draft of this literature review written. I am done messing around, avoiding it and finding literally anything else in the world to do instead – this thing is getting done this week – pinky promise.

Now, moving on to a more positive part of thesis progression..

Systematic Review

Last time I checked in, my systematic review was sitting at 33,496 words, and it had gone to my primary supervisor for comments. The comments were pretty limited, which I was pleasantly surprised about. The majority of the comments were related to changing the presentation of the results section to cut down words and make the chapter as a whole flow more easily. I made those changes and the chapter is pretty much done – it’s now 25,387 words which I’m much happier with.

I’ll have a final read through it when I put all of the thesis chapters together to ensure there’s no repetition in the introduction/background sections etc, but for now, it’s off my to do list (hoorah!).

Qualitative Study

I’m pretty happy with where I’m at with this – I handed in a first draft and got comments back from both of my PhD supervisors with lots of brilliant pointers of how to build on what I’ve already got, expand my points and set my findings in context with the wider literature. Next steps are to go through these comments and make improvements etc. I feel pretty confident with that though, which is nice; I had a meeting with my supervisors to talk through changes etc and they were really helpful so it’s just a matter of me making time to do it, and getting on with it.

Currently, it’s sitting at 15,610 words and it will undoubtedly grow by another thousand of two by the time it’s finished.

User-testing Study

In my last update I mentioned that the qualitative document that I had then, needed to be split up into 2 separate chapters – I’ve now done this, and I have a ‘qualitative study’ chapter, and a ‘user-testing study’ chapter. I used the writing retreat that I went on at the beginning of March to work exclusively on this user-testing chapter, and I made some really good progress. I handed in a first draft to my supervisors in the middle of March, and already have comments back to work on (side note: having supervisors that actually engage with my work and want to help me develop my skills is the absolute best thing; if you’re looking for PhDs at the moment, please, please make supervisor choice a priority – it makes a huge difference to your experience).

This chapter is currently sitting at 8,384 words, and I expect it to increase to ~9,500 words or so once I’ve gone through and addressed comments etc.

Aims for the next 2 months
  • Literature review – STOP MESSING ABOUT AND WRITE THE BLOODY THING!
  • Systematic review – Slot into final thesis structure.
  • Qualitative study – Address comments and slot into final thesis structure.
  • User-testing study – Address comments and slot into final thesis structure.
  • Thesis introduction – Get a first draft written for the beginning of May.
  • Thesis conclusions – Get a first draft written for the middle of May.

I want an entire working thesis draft by the end of May – that’ll give me a month before hand-in to ready through it a million times, tweak things, ensure I haven’t repeated myself a million times, and then make sure that the formatting and referencing is correct. Phew. This is all getting, very, very real.

Book Review – Somebody I Used to Know: A Memoir by Wendy Mitchell

Last year I read a lot of books; I averaged a book a week, and I definitely saw an improvement in my writing. So far this year, I’ve been doing alllll the writing, and comparatively little reading, and I can feel my writing abilities slipping. My last book review was published last November, so I figured it was time to get reading again. This time I went for something a bit heavier than my previous popular science books, because *gasp* it’s one that doesn’t just explain science, it actually makes the science and research that many of us do every day, much more human. Wendy Mitchell’s ‘Somebody I Used To Know’ came out early last month, and I sped through it in a matter of days, get it here.

What the publisher says

What do you lose when you lose your memories? What do you value when this loss reframes how you’ve lived, and how you will live in the future? How do you conceive of love when you can no longer recognise those who are supposed to mean the most to you?

When she was diagnosed with dementia at the age of fifty-eight, Wendy Mitchell was confronted with the most profound questions about life and identity. All at once, she had to say goodbye to the woman she used to be. Her demanding career in the NHS, her ability to drive, cook and run – the various shades of her independence – were suddenly gone.

Philosophical, profoundly moving, insightful and ultimately full of hope, Somebody I Used to Know is both a heart-rending tribute to the woman Wendy once was, and a brave affirmation of the woman dementia has seen her become.

What the critics say

“A brave and illuminating journey inside the mind, heart, and life of young-onset Alzheimer’s disease.” (Lisa Genova, neuroscientist and author of Still Alice)

“Nothing is more frightening than dementia, says Wendy – and yet, every day, she chooses to face her fears head on. By sharing her story Wendy challenges assumptions and ignorance about dementia. Read this amazing book. It will change a lot of people’s minds about what it means to have the disease” (Professor Pat Sikes, University of Sheffield)

“A lucid, candid and gallant portrayal of what the early stages of dementia feel like … This memoir, with its humour and its sense of resilience, demonstrates how the diagnosis of dementia is not a clear line that a person crosses; they are no different than they were the day before” – (Nicci Gerrard, Observer) (Note – this piece, also written by Nicci Gerrard for the Observer provides a really lovely picture of Wendy that makes the book all the more emotional).

My thoughts

I’ve followed Wendy Mitchell on Twitter for a long time (here if you don’t follow her already!), and I’ve also been eading her blog for over a year (again, here if you haven’t checked it out already), so when she announced that she was writing a book I preordered straight away. Wendy is very involved with research; as the book tells you, she no longer ‘works’ – I say that reluctantly, meaning she doesn’t work in her previous NHS role, but she’s an absolute trooper when it comes to supporting researchers, educating early career nurses, explaining what it’s like to live with dementia to businesses, members of the public.. the list really does go on.

Honestly, I expected the book to be a sort of expanded version of her blog. I expected snippets of her every day, stories of her daughters growing up, and maybe the odd look back on diagnosis etc. What I actually got was Wendy Mitchell’s character, habits, and most poignant memories all wrapped in a book that genuinely made me feel like I was getting to know her, her daughters Gemma and Sarah, and even Billy the cat.
I very rarely read books that enable me to really get to know the characters within them, but once I’d finished reading Somebody I Used to Know, I genuinely felt like I’d had a conversation with Wendy over a cup of her beloved Yorkshire tea (side note – Yorkshire tea is the best tea, she’s absolutely right). Parts of the book made me want to cry, parts of it made me feel anger and frustration similar to what I expect Wendy’s family and friends must have felt when she was diagnosed, but the overarching feeling I had throughout the entire book was hope. Wendy is inspirational, at no point does she give up; she’s a problem solver – she just figures it out and gets on with it. Even as I was fighting back tears I found myself trying to think how I’d ‘get around’ dementia if I was her.

This book is not only a brilliant reference point for people who have a close connection to those living with dementia (whether that’s a family/friend, or contact within their working life), it’s a really good way to take the fear out of dementia generally. Dementia is a disease so terrifying and mysterious that many of us avoid thinking or talking about it entirely, but Wendy’s perspective and positive attitude made me rethink my views on how I might cope with living with dementia. She makes it very clear that dementia is not simply the end stage, it’s a disease with a start, middle and end just like any other – and it’s completely reasonable to live a happy and independent life with dementia.

Would I recommend it?

Part of me wants to be very enthusiastic and shout ‘YES PLEASE READ THIS BOOK’, but I’m hesitant to. This hesitation is itself hesitant because it is a brilliant book… let me explain. I don’t have any relatives that are living with dementia right now, in the past I have had, and this book provided me with a chance to look back on my memories with that person fondly. I think this book should be read by people that have contact with people living with dementia, but I know that the emotion required to get through it could be draining for people with close friends/family living with the condition. Put simply, I’d recommend it, but with an emotional warning – read this when you feel like you’re in a good place to do so, sometimes it’s important to be selfish and look after your own mental health, first.