As I said yesterday, this week I’ve been in Oxford at the Evidence live conference. Thankfully, Oxford cooled down today and I’m much, much less grouchy as a result.Yesterday’s blog post got a really good response and people seemed to appreciate my write up of day 1, so here’s day 2 for you.
Breakfast session – The REWARD alliance and the EQUATOR network: promoting increased value of research
Iain Chalmers and Doug Altman
Weirdly, breakfast sessions at conferences are usually my favourite talks despite the fact I’m very much not a morning person. The people who attend always seem extra passionate, they’re engaged with discussion, and there’s usually croissants which helps too. This session from Iain Chalmers and Doug Altman was predictably, brilliant. I already knew about the REWARD Alliance and the EQUATOR Network before attending, but this fleshed out my thoughts on both of these initiatives. It also demonstrated that even Doug Altman can struggle to get funding sometimes – the EQUATOR Network doesn’t have grant funding currently. The discussion after Iain’s talk was particularly interesting; during his talk he said that ethical committees are actually being unethical in the way that they approve research but do not make up a big proportion of the people making a noise about research waste. An audience comment (from an ethics committee chair) followed and he made a very good point – we as researchers are often going into the conversation with ethics committees with our guards up. We’re ready for a fight before the first punch has been thrown, and it automatically puts the committee on the back foot before you’ve started. Rather than trying to invent ways to circumvent the bureaucracy we so often encounter, we need to work with ethics committees to change the system so that we can improve the quality of research, and try and make the process of doing so more easy for researchers.
Keynote session – Better data, reduced waste in research and public engagement to transform patient care
Chaired by Tessa Richards, presentations from Trish Groves, Simon Denegri and James Munro
Yet another brilliant keynote session; I think this might have been my favourite session of the entire conference.
Tessa Richards started off by talking about patient perspectives, involvement, and how patients are pushing the research agenda where we are dropping the ball. She signposted to some useful resources: www.disruptivewomen.net the #WeAreNotWaiting and #patientsincluded movements, and highlighted the lack of patient voices at Evidence Live this year. Hopefully the organisers will hear Tessa’s call and ensure we have patient representation weaved throughout next year’s programme. Trish Groves took to the floor and discussed how we can increase value in health research and make it truly able to improve patient care. The answer? Patient involvement. She highlighted the role of patient reviewers within the BMJ’s publication and review process too which I thought was brilliant.
Next up, Simon Denegri. He started his talk with a series of emojis so that was me immediately on board.. Anyway, yet another fantastic talk that focussed on patients, patient involvement, and the funding gap between research planning and research conduct. We shouldn’t be involving patients throughout every stage of our research work; it can be a waste of their time. To get the most value out of patient insight, and the most efficient use of patient time, we need to work with patients to see where they want to be involved and where they feel they can make the most difference to the research project. Simon also had a great analogy for the tokenistic patient involvement we so often see – a Ford Escort is still a Ford Escort no matter if you add a spoiler, tint the windows and lower the suspension; for you to maintain any street-cred at all, you really just need to re-build.
The session finished with a talk from James Munro from Care Opinion; a website that allows patients to give anonymous feedback about the health services they interact with across the UK. Uniquely, this platform is also linked up with healthcare professionals, this means that concerns, complaints etc can be resolved efficiently. James gave a few examples throughout his talk, one of the most simple being a patient that could not hear when the nurse called her name in the clinic – the seats were faced towards the wall and the patient was deaf in one ear, meaning she couldn’t figure out where the noise was coming from. In just 2 days contact had been made with the clinic involved, and a plan made to turn the seats around to ensure patients don’t run into this problem again. This service isn’t focussed on clinical problems, it really gives patients a voice about any aspect of their interactions with the health services; something as simple as turning the chairs to face a different direction could make the process of visiting a GP so much more comfortable. James also highlighted the need to keep an eye on the ‘small data’ in a world where big data seems to be promising us so much. Big data certainly has the potential to be great, but small data gives meaning. My personal favourite patient quote that James referenced in this talk? ‘Thank you for fixing my brain, it’s chuffing great.’
Parallel session – Clinical trials
Chaired by Jeffrey Aronson, presentations from Amy Rogers, Penny Reynolds, Heidi Gardner (yep, me!), Patrick van Rheenen and Ignacio Atal
A really interesting session that covered a broad range of topics related to clinical trials. Highlights from Amy Rogers from the University of Dundee who gave a brilliant talk, ‘Large streamlined trials – what works, and what doesn’t’. Her talk gave a brilliant overview of the challenges that pragmatic trials can bring, but also the ways that trials units manage to overcome these hurdles in order to conduct brilliant trials. Penny Reynolds’ talk was also brilliant, ‘Why academic clinical trials fail: trial ‘cemetery demographics’ and a case study’. The trials graveyard is something I seem to know quite well given that my research focusses on recruitment – trials are often abandoned due to poor recruitment. Penny’s study drew attention to the management problems that trials faced, and she hypothesised that poor recruitment is a symptom of the underlying disease of bad management.
After these two talks I then presented work on behalf of the HSRU Public Engagement With Research Group – mentioned in this blog post. I talked about our event, ‘Explorachoc’; a chocolate trial that aimed to demonstrate randomisation to the public. I took along the coloured balls we used in Explorachoc, and sweets in yellow and blue bags, and did a live demo of our event. Jeff Aronson who was chairing the session seemed to enjoy being randomised to the blue arm of the trial, which earned him a marshmallow (I did take chocolates with me but they suffered a tragic melting accident between London and Oxford on Tuesday evening, so marshmallows and jelly babies it was!).
A few pictures of my presentation taken by members of the audience:
Picture taken from the The Centre for Evidence-based Veterinary Medicine Twitter page.
Picture taken from the BMC Medical Evidence Twitter page.
Unfortunately I had to leave after this session to catch a bus to Heathrow Airport to make sure I made my flight. British Airways had other ideas though; I’m currently typing this from the Holiday Inn Express at Heathrow because my flight was cancelled due to bad weather. Hopefully I’ll finally make it back to Aberdeen tomorrow morning! I wish I’d known that my flight was cancelled earlier because the final talks looked brilliant, I did manage to keep up to date via Twitter which was great – take a look at #EvidenceLive if you want to find out more!
So that’s it, Evidence Live is over for another year! A brilliant programme filled with inspiring and thought-provoking talks, enthusiastic speakers and a beautiful setting too. This time next year I’ll be nearing thesis submission, so I may have to skip Evidence Live 2018; I’m keeping my fingers crossed that I can make the timings work because it’s one of the most down to Earth, friendly and determined atmospheres I’ve experienced at a conference.
The one thing I wish Evidence Live had this year? A doodler (I don’t think that’s the technical term). Last year Stefania Marcoli was at the conference each day, and she did live summaries including snippets of talks and quotes from attendees. This year we didn’t have anyone doing this, and I think the conference really missed it.
Here’s last year’s summary from day 1:
Credit: Stefania Marcoli